world down syndrome day

Wednesday, March 21, 2012

Today is the 7th anniversary of World Down Syndrome Day, for the first time in 2012 this day will officially be observed by the United Nations. Each year the voice of people with Down syndrome and those who live and work with them grows louder...but there is still much more that we can do.
When Beckett was born and we discovered that he had Down syndrome I was scared. My fear was based on the unknown, I really didn't know anything about Trisomy 21. I do now, like every other parent with a child with Down syndrome, I'm an expert! Down syndrome doesn't define Beckett, he's a boy that loves his family, cars, trains, movies and the park - he also happens to have an extra chromosome.
When Beckett was born I was constantly told what he wouldn't be able to do, it's such a shame that the beginning was so tainted with negativity. When I talk to new parents I tell them how wonderful our son is and how one day Down syndrome really won't cross their mind when they think of their child. It's true. Beckett does everything his sisters do, it takes him a little longer but that's okay.
Look at that boy in the photos above, I don't see Down syndrome, I don't see what he can't do. I see a ridiculously cute boy, who is full of love - like his sisters, he is pure joy. I can't wait to see what he achieves.
Happy World Down Syndrome Day.

7 comments:

Sorata said...

Thanks for sharing, Tamara. You're such a strong role model for our community. We are proud of you.

Lisa said...

I see a gorgeous little boy who is so full of life and hope! I've been following you since he was born and you are such an amazing mom. Please keep sharing your stories.

Anne said...

http://www.youtube.com/watch?v=CzzfG1Ku5LU&feature=player_embedded

The cutest video on YouTube~

Happy Down Syndrome Day!

Poot & Boogie said...

Happy Down syndrome day to you and your family! This is our 2nd one!

Karen said...

Tamara, I love your positive, upbeat take on life...I am glad that we have World Down Syndrome day...hopefully people can learn more about Down Syndrome and see the positives instead of the negatives...you have a beautiful, little son, and he and his sisters give me much pleasure when you share them in photos and in stories about their lives...thank you so much...Happy belated World Down Syndrome Day...I remember when you announced that day on CTV...

Veronica Roth said...

Lovely and sympathetic post Tamara. You might enjoy the blog of a young mom whose name is Kelle Hampton. She is very involved with DS children. Her blog is called Enjoying the Small Things.

Nina said...

i stumbled upon your blog via @doctorscloset and i want to let you know that the love you have for your family is beautiful. my daughter doesn't have Down Syndrome but she does have an extremely rare disease that is thankfully benign however very visible. reading your blog really encouraged me to not allow the difference define my child. thank you so much!